Well, what a week it has been. Only 8 days ago son Peter, aged 10, was suddenly admitted into hospital with an acute asthma attack which happened totally out of the blue. Frightening for him and scary for myself as a parent wondering what had caused this episode and seeing him so very unwell.
17 year old son George held the fort at home, juggling final AS revision hours and MIT practice entrance exams with cooking meals for the younger ones, and ensuring that they weren’t too worried about what was going on with Peter. My children are all amazing and I am so lucky to have such a close knit family who always pull together in any crisis.
Yeovil Paediatric Ward came up trumps as usual…the care was superb; staff always friendly and putting Peter at ease; the facilities in the play areas fantastic thanks to Time Is Precious [another charity that are well worth supporting!!!]; the food fantastic; the consultant who ensured Peter was discharged in time to attend his Karate Prize Giving later on the Saturday afternoon was so kind. Thank you all!
AND, also a massive thank you to our wonderful GP, Practice Nurses and Reception Staff who acted so fast when I appeared with Peter in his dressing gown early on the Friday morning. They literally dropped everything to help him…despite the busy surgery and waiting room. Apologies if you were one of the patients having to wait!
I managed to chat to some parents whilst I was in the hospital and I was stunned by what some of their children have had to endure in their short lives. One little girl particularly hit a mark as she has struggled through 3 years of almost continuous chest infections, collapsed lungs and pneumonia. Her darkened eyes were so sad; not what a 3 year old should experience. She cannot go outside if there is anything but sunshine and warmth so cannot play with others or have that freedom that most of us can remember from childhood.
This little girl and her family need the support of HNT as much as a child on the autistic spectrum, or a family with a child with physical complex needs. Her education is likely to be affected due to inability to sustain more than a couple of school days weekly, and so additional support in school or through home learning may need to be accessed…if funding permits!
The knock-on affect on the family also may have its toll…how unfair it is that siblings cannot also enjoy the fun freedom of childhood due to their sister’s illness. I should imagine that there is no possibility of both parents being able to work as one would need to be on constant call for their little girl and so finances may be an issue. The lack of sleep when hospital admissions happened, the constant worry and need for a more solid diagnosis and therefore care plan and treatment, the separation of parents during these times as one looks after things at home whilst the other is in the hospital MUST have a long term affect.
It has got me thinking more about how HNT can expand in helping children and their families who have additional needs as well as ensuring the support remains for the Preschool Special Needs Groups. SO…watch out for ideas towards the end of the year and into 2018!!!!
Peter and William both received awards needless to say for their Karate which brought back a smile to their faces…well done boys! I am so proud of you!
The next blog will be written over the weekend and will have photos from Buckingham Palace…a huge honour to represent HNT and the SEN children!